Sara has been a part of the CdLS family for over 30 years due to her sister having CdLS. Being involved with the Foundation for most of her life inspired her to go on and train to become a speech and language therapist and work in a special needs school. She is now a consultant for the Foundation as well as a Trustee. She says, "I love the fact that my wonderful, unique little sister with this rare condition helped to shape me in to the person I am today."