Reaching Out

Reaching Out

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News

Run for Charity

We have registered for multiple events around the country for fundraising opportunities to get involved in. If you're not up to a marathon, then a range of fun and virtual, regional events, including some less gruelling runs, may be right for you... read more

 

CdLS Specific Be-Well Checklist Now Available

Helping parents, carers and professionals to reduce challenging behaviour and improve the wellbeing of people with Cornelia de Lange Syndrome... read more

 

Family Stories Book is published

Family BookWe are very happy to announce that the book of family stories from our CdLS parents and carers, has been published and is available to buy on Amazon... read more

 

Advice, Tips and Ideas for Coronavirus Situation

The Foundation has put together some useful information, tips to be prepared for any eventuality and ideas for things to do while in isolation... read more

 

COVID-19 and Implications for CdLS

We have sought advice from our professionals on any extra considerations for our individuals with CdLS... read more

 

Ranitidine Recall - Advice

We've had many enquiries following media coverage about contamination of Ranitidine, which many of our CdLS people are taking... read more 


What's On & Research

Southampton Conference Progamme Details…

The Autumn event will be on 21st October 2023, at the Holiday Inn, Southampton… read more

XII CdLS World Conference, Zaragoza, Spain

The 2023 World Conference is now taking registrations. Book now to secure your place at the premiere event in the CdLS calendar… read more

BEOND Study. Get Involved!

Take part in a new survey which aims to give researchers a better understanding of behaviour, wellbeing, emotion, cognition, and health in CdLS… read more

Emotional and Social Wellbeing Study

Are you a parent or carer of a child with a rare genetic syndrome, and would be willing to share your insight and experience?… read more

Online Teacher Training Videos

We are looking for children with Cornelia de Lange Syndrome aged 4-17 years to complete some fun activities that will help us find out more about the social difficulties that some children with CdLS experience… read more 

Participation Opportunity: Social Difficulties in Children with CdLS

Are you a parent or carer of a child with a rare genetic syndrome, and would be willing to share your insight and experience?… read more 

Assessment Tools for Emotional Distress. Research Still Ongoing

Researchers are offering a £5 voucher incentive for participants in their work on developing improved assessment tools to detect distress in children with learning disabilities… read more