» Natalie Blockley

My name is Natalie I am married with two young sons Arthur and Seth. Arthur was born in October 2014 and was diagnosed with CdLS 9 months later, we contacted the foundation and attended our first conference the weekend of Arthur’s first birthday. We had very little knowledge of CdLS  and came away from the conference with the knowledge and support to enable us to move forward and give Arthur the best possible care.

I was asked to be a regional volunteer for the Midlands in 2017 I have enjoyed organising fundraising events, getting to know the families and raising awareness within this area.

In my role as office administrator I am looking forward to welcoming new families and ensuring that everyone receives the knowledge and support they need through the foundation and the conferences.