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News
Royal Parks Half Marathon
Did watching the London Marathon make you think that maybe you would like to have a go? Did seeing all of our CdLS runners bringing it home inspire you? If so, we can offer a chance on a smaller scale... read more
Run for Charity
We have registered for multiple events around the country for fundraising opportunities to get involved in. If you're not up to a marathon, then a range of fun and virtual, regional events, including some less gruelling runs, may be right for you... read more
CdLS Specific Be-Well Checklist Now Available
Helping parents, carers and professionals to reduce challenging behaviour and improve the wellbeing of people with Cornelia de Lange Syndrome... read more
Family Stories Book is published
We are very happy to announce that the book of family stories from our CdLS parents and carers, has been published and is available to buy on Amazon... read more
Advice, Tips and Ideas for Coronavirus Situation
The Foundation has put together some useful information, tips to be prepared for any eventuality and ideas for things to do while in isolation... read more
COVID-19 and Implications for CdLS
We have sought advice from our professionals on any extra considerations for our individuals with CdLS... read more
Ranitidine Recall - Advice
We've had many enquiries following media coverage about contamination of Ranitidine, which many of our CdLS people are taking... read more