» Research

Online Teacher Training Videos (March 2024)
Sleep Study in CdLS (February 2024)
Mental Health in CdLS (February 2024)
BEOND Study (May 2023)
Emotional & Social Wellbeing (March 2023)
Participation Opportunity: Social Difficulties in Children with CdLS (April 2021)
Research study: Assessment tools for emotional distress in children with learning disabilities (February 2020)
Aston University Anxiety Research (May 2019)
Another CdLS Gene Discovered (February 2018)
Research Projects at Guildford Conference (March 2016)
Study on CdLS People with a Change in Gene SMC1A (November 2015)
Important Research from Cerebra (October 2015)
Research into hospital experiences with CdLS (May 2015)
New research. Social development in CdLS (June 2014)
Foundation backs research work (January 2003)
Mice clue to CdLS gene (October 2002)
Research blow as funding faces axe (October 2000)
Hunt goes on for gene clues (July 2000)

Foundation backs research work

The CdLS Foundation UK and Ireland has pledged support to an Italian research project, NEPHIRD (a European network for epidemiological and public health data collection on rare diseases).

NEPHIRD has now received European Commission funding. Scientific Advisory Council (SAC) member, Dr Angelo Sellicorni from Milan – a regular visitor to UK conferences – requested the Foundation’s endorsement of the project to help widen the involvement of more EU states. Several medical professionals from the UK are also involved in the research.