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News
Advice, Tips and Ideas for Coronavirus Situation
The Foundation has put together some useful tips to be prepared for any eventuality and ideas for things to do while in isolation... read more
COVID-19 and Implications for CdLS
We have sought advice from our professionals on any extra considerations for our individuals with CdLS... read more
Gene Therapy and Misperceptions about CdLS
We are aware that there has been a lot of discussion about research into gene therapy to improve aspects of CdLS and some misperceptions of CdLS... read more
Ranitidine Recall - Advice
We've had many enquiries following media coverage about contamination of Ranitidine, which many of our CdLS people are taking... read more
What's On & Research
Study into Impact on Wellbeing During Pandemic
Are you a parent of a child with a rare disorder? We want to find out how Covid-19 has affected your family’s wellbeing. Take part in our survey to help us find ways to support families now and in the future. read more
CdLS Family Conference Basingstoke April 2020
In light of the current circumstances we have had to make the difficult decision to postpone the Spring Conference which was due to be held in Basingstoke on 25th April 2020... read more
Assessment tools for emotional distress. Can you help?
Researchers have received funding to develop improved assessment tools to detect distress in children with learning disabilities... read more