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News
CdLS Specific Be-Well Checklist Now Available
Helping parents, carers and professionals to reduce challenging behaviour and improve the wellbeing of people with Cornelia de Lange Syndrome... read more
Family Stories Book is published
We are very happy to announce that the book of family stories from our CdLS parents and carers, has been published and is available to buy on Amazon... read more
Advice, Tips and Ideas for Coronavirus Situation
The Foundation has put together some useful information, tips to be prepared for any eventuality and ideas for things to do while in isolation... read more
COVID-19 and Implications for CdLS
We have sought advice from our professionals on any extra considerations for our individuals with CdLS... read more
Ranitidine Recall - Advice
We've had many enquiries following media coverage about contamination of Ranitidine, which many of our CdLS people are taking... read more
What's On & Research
East Midlands Autumn Conference Confirmed
We now have details of the venue for the next conference. It will be 29th October 2022 at the Hilton East Midlands Airport… read more
Online Teacher Training Videos
Are you a parent or carer of a child with a rare genetic syndrome, and would be willing to share your insight and experience?… read more
Participation Opportunity: Social Difficulties in Children with CdLS
We are looking for children with Cornelia de Lange Syndrome aged 4-17 years to complete some fun activities that will help us find out more about the social difficulties that some children with CdLS experience… read more