Reaching Out

Reaching Out

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News

Database Update

We have found that much of the contact information we hold is out of date. As a result, the only way we can keep the integrity of our data intact is if families get in touch.... read more

    

International CdLS Awareness Day 2018

This important day for raising awareness and funds, falls on Saturday 12th May 2018, Start planning your events and help spread the word! See events already happening around the country... read more

  
 
 

University of Edinburgh Discovers New CdLS Gene

 

Dr David Fitzpatrick's team at the MRC Human Genetics Unit, University of Edinburgh, have unearthed a new gene that links to CdLS... read more


Jacquie Griffin

We are sad to have to announce that Jacquie is moving on to pastures new... read more

 

What's On

Edinburgh another fantastic weekend. Next conference in October Cambridge/Peterborough area

Our Autumn conference weekend will be in either Peterborough or Cambridge. Watch this space… read more

Don't forget Awareness Day - May 12th

See the news item about this!