Reaching Out

Reaching Out

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News

Advice, Tips and Ideas for Coronavirus Situation

The Foundation has put together some useful information, tips to be prepared for any eventuality and ideas for things to do while in isolation... read more

COVID-19 and Implications for CdLS

We have sought advice from our professionals on any extra considerations for our individuals with CdLS... read more

Gene Therapy and Misperceptions about CdLS

We are aware that there has been a lot of discussion about research into gene therapy to improve aspects of CdLS and some misperceptions of CdLS... read more

Ranitidine Recall - Advice

We've had many enquiries following media coverage about contamination of Ranitidine, which many of our CdLS people are taking... read more

What's On & Research

Study into Impact on Wellbeing During Pandemic

Are you a parent of a child with a rare disorder? We want to find out how Covid-19 has affected your family’s wellbeing. Take part in our survey to help us find ways to support families now and in the future. read more
 

CdLS Family Conference Basingstoke April 2020

In light of the current circumstances we have had to make the difficult decision to postpone the Spring Conference which was due to be held in Basingstoke on 25th April 2020... read more

   

Assessment Tools for Emotional Distress. Research Still Ongoing

Researchers are offering a £5 voucher incentive for participants in their work on developing improved assessment tools to detect distress in children with learning disabilities... read more

  

Anxiety Research Ongoing

Aston University's ongoing research into Anxiety will have many opportunities for families to get involved... read more