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News
Database Update
We have found that much of the contact information we hold is out of date. As a result, the only way we can keep the integrity of our data intact is if families get in touch.... read more
International CdLS Awareness Day 2018
This important day for raising awareness and funds, falls on Saturday 12th May 2018, Start planning your events and help spread the word! See events already happening around the country... read more
University of Edinburgh Discovers New CdLS Gene
Dr David Fitzpatrick's team at the MRC Human Genetics Unit, University of Edinburgh, have unearthed a new gene that links to CdLS... read more
Jacquie Griffin
We are sad to have to announce that Jacquie is moving on to pastures new... read more
What's On
Edinburgh another fantastic weekend. Next conference in October Cambridge/Peterborough area
Our Autumn conference weekend will be in either Peterborough or Cambridge. Watch this space… read more