My name is Cath McCarney and I've been a trustee with the foundation since 2012, but CdLS UK & Ireland has been an important part of my life for much longer than that!
My younger sister Mary has CdLS and she is now 27 years old. We came to our first conference as a family months after her birth, and we have been involved with the foundation in one way or another ever since. I always loved coming to the conferences growing up - you could never underestimate the how special it was to finally be a 'normal' family in a room full of people - especially when they didn't bat an eyelid at some of Mary's more interesting behaviours!