» Alan Peaford

Alan Peaford was made honourary life president of the Foundation after serving more than 21 years as the chairman of the UK group. Having served on the board of the US Foundation he was instrumental in the formation of the international federation of CdLS support groups and of the international Scientific Advisory Committee. He was awarded an Exceptional Achievement Award by CdLS World in 2011.

Alan became involved in creating today's Foundation after he and his wife Jane had a daughter Victoria (b1985) with the syndrome. As a journalist and communications specialist he used his contacts to develop awareness for the condition and to bring families together with an organisation in place.